Information, Knowledge, & Support Adviser (0.6 FTE)

About us

The UCL Dementia Research Centre (DRC), led by Nick Fox, conducts clinical research into dementia. Its work focuses on understanding the causes of dementia, factors that influence disease progression, and ways to better support people with dementia and their families.

Rare Dementia Support (RDS) is a UCL-led service providing specialist social, emotional, and practical support for people affected by rare dementias. Based at the UCL Dementia Research Centre and supported by partners and The National Brain Appeal, RDS helps individuals and families access information, tailored guidance, and peer support.

About the role

You will contribute to the work of the Rare Dementia Support (RDS) direct support team providing advice via support calls and in-person at the new Rare Dementia Support Centre (RDSC) by supporting people living with atypical, inherited, and young onset dementias, their carers, their families, and their friends, and professionals and practitioners working to support them. This role includes the opportunity to shape and direct special projects related to the development of new support groups, professional training, or patient and public involvement/engagement (PPI/E), in line with the activities of RDS and the wider Dementia Research Centre.

The role is offered part-time, 0.6 Full Time Equivalent (29.1 hours per week); Monday, Tuesday, Wednesday are the preferred working days but there may be occasions where flexibility is required due to meetings/events.

The post is available immediately and funded by a donation from The National Brain Appeal until 31 March 2028 in the first instance.

Interviews are likely to place in the afternoon of Monday 20th July.

For a full job description please visit UCL’s online recruitment portal (https://www.ucl.ac.uk/work-at-ucl/search-ucl-jobs) and search using vacancy reference B02-10620. To apply, please upload a current CV, complete the online application form, and use the supporting statement section or upload a cover letter to outline how you meet the essential and desirable criteria for the role. Please do not upload any additional attachments as these will not be considered by the selection panel.

About you

You will have an Honours degree (or equivalent) in a relevant health-related discipline and experience delivering pre-, peri-, and post-diagnostic rare dementia support. Extensive and expert knowledge of atypical, inherited, and young onset dementias, and up to date knowledge of the range of support available to people living with rare dementia and their families, and relevant aspects of the health and social care systems in the UK is essential.

A demonstratable understanding of, and ability to, manage the needs of patients with degenerative conditions, including the use of specific support skills and strategies as appropriate is also a requirement. You will also have excellent interpersonal, organisational, and communication skills, with the ability to communicate highly sensitive information to cognitively impaired and/or psychologically vulnerable people and their carers, who may have significant barriers to understanding or acceptance.

What we offer

Actual salary offered at UCL Grade 7 in the range £26,388.60 - £31,551.60 (i.e., 60% of £43,981 - £52,586) per annum including London Allowance.