Project Coordinator

We are a world class research-intensive university. We deliver teaching and learning of the highest quality. We play a leading role in economic, social and cultural development of the North East of England. Attracting and retaining high-calibre people is fundamental to our continued success.

The Role

This is an exciting opportunity to join the world-renowned John Walton Muscular Dystrophy Research Centre (JWMDRC) at Newcastle University supporting both the Adult SMA REACH project and Patient Registry Team.

Adult SMA REACH is an NHS sponsored academic observational study, collecting clinical data and outcome measures from adult Spinal Muscular Atrophy (SMA) patients. The Registries Team manage a portfolio of national and international neuromuscular disease registries (longitudinal databases collecting genetic and clinical information on affected individuals) and engage with a variety of stakeholders including patient organisations, academia and industry. The postholder will be responsible for data quality and completeness, communications and promotion of both the Adult SMA REACH project and patient registries. They will also provide administrative support to other relevant projects as required.

The role is full time, fixed term until 30 April 2027.

Please reach out to Aleks Carver at aleks.carver@newcastle.ac.uk if you have any questions. If you are successful in your application, you will require a Research Passport before you can commence in the role.