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New Co-Designed Questionnaire Sheds Light on Autistic and ADHD Adolescents’ Responses to School Upset

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Groundbreaking Co-Designed Tool Reveals Distinct Emotional Responses Among Autistic and ADHD Adolescents in European Schools

A new study published in the European Child & Adolescent Psychiatry journal highlights how autistic and ADHD adolescents experience and respond to upsetting events in school settings in ways that differ markedly from their neurotypical peers. The research, led by researchers at King’s College London’s Institute of Psychiatry, Psychology & Neuroscience in collaboration with University College London and Anna Freud, introduces the My Emotional Responses in School Inventory (MERSI), a 20-item self-report questionnaire developed through extensive co-production with neurodivergent young people.

The study underscores the value of involving those with lived experience in shaping research tools, ensuring the measure captures authentic perspectives rather than relying solely on adult or neurotypical assumptions. This approach aligns with broader European efforts to promote inclusive educational research that respects diverse neurotypes.

Development of the MERSI Questionnaire Through Neurodivergent Collaboration

Researchers worked closely with neurodivergent adolescents and young adults over nearly two years to create the MERSI. The process involved iterative feedback sessions where participants reviewed draft items, suggested refinements, and validated the language used to describe emotional experiences following upsetting school events. This co-design ensured the questionnaire avoids pathologising natural responses and instead frames them in terms that resonate with the young people themselves.

The resulting tool focuses on 20 specific responses after being upset, moving beyond frequency counts to examine the intensity and nature of emotional reactions. Such methodology reflects growing recognition across European research communities of the importance of participatory approaches in child and adolescent mental health studies.

Key Findings on Differential Responses to School Upset

Autistic adolescents in the study showed distinct patterns in how they processed and expressed upset compared to those with ADHD or combined profiles. While all neurodivergent groups reported higher overall emotional burden than neurotypical peers, the specific response styles varied. Autistic participants tended toward internalised reactions, whereas ADHD participants more frequently described externalised expressions of distress.

These differences were measured using the newly validated MERSI alongside established mental health indicators. The findings suggest that school environments may trigger unique cascades of emotional responses depending on neurotype, with implications for how educators and support staff interpret and respond to student behaviour.

Emotional Burden and Links to Mental Health Outcomes

Neurodivergent adolescents reported experiencing approximately twice the emotional burden from school-related upsetting events compared to neurotypical classmates. This elevated burden showed significant correlations with symptoms of depression and anxiety, consistent with known higher rates of co-occurring mental health challenges in these populations.

The study emphasises that these responses, sometimes labelled as emotional dysregulation, may represent adaptive or understandable reactions within challenging school contexts rather than inherent deficits. This perspective encourages a shift toward supportive rather than punitive approaches in European classrooms.

Methodology and Participant Insights

The research involved a sample of adolescents aged 11 to 15, including those with autism, ADHD, or both, alongside neurotypical controls. Participants completed the MERSI and related measures in controlled settings to ensure reliable data collection. Qualitative elements from the co-design phase enriched quantitative results, providing context for why certain items resonated differently across groups.

Ethical considerations included obtaining informed assent from young participants and consent from guardians, with particular attention to accessibility and reducing potential distress during data collection.

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Implications for Educational Practice Across Europe

The introduction of the MERSI offers European educators and clinicians a practical, evidence-based instrument for assessing school-related emotional experiences. Schools in countries such as the United Kingdom, Germany, and the Netherlands could integrate the tool into pastoral care frameworks to identify students who may benefit from targeted support.

By highlighting neurotype-specific response patterns, the study supports the development of differentiated strategies that respect individual differences while promoting overall wellbeing and academic engagement.

Broader Context of Neurodiversity Research in European Institutions

This publication contributes to a growing body of work from leading European centres focused on neurodevelopmental conditions. Institutions like King’s College London and UCL continue to advance understanding through collaborative projects that prioritise co-production, a model increasingly adopted in EU-funded initiatives aimed at improving mental health outcomes for young people.

The emphasis on self-report from neurodivergent voices aligns with recommendations from European bodies advocating for greater involvement of affected communities in research design and interpretation.

Future Directions and Potential Applications

Researchers anticipate further validation of the MERSI across additional European countries and age groups. Future studies may explore longitudinal outcomes, examining how early identification of response patterns influences long-term mental health trajectories.

The tool could also inform teacher training programmes at European universities, equipping future educators with nuanced understanding of neurodivergent emotional experiences in school environments.

Stakeholder Perspectives on the Study’s Significance

Neurodivergent young people involved in the co-design process described the MERSI as empowering, allowing them to articulate experiences that traditional measures often overlooked. Clinicians and educators have welcomed the resource as a bridge between research findings and practical classroom application.

Parents and advocacy groups across Europe have noted the study’s potential to reduce misunderstandings that can lead to inappropriate interventions or exclusionary practices.

Challenges in Implementing Neurodiversity-Informed Approaches

Despite the promise of tools like the MERSI, European schools face resource constraints and varying levels of awareness regarding neurodiversity. Training for staff remains inconsistent, and systemic barriers can limit the adoption of new assessment methods.

Addressing these challenges requires coordinated efforts involving ministries of education, universities offering teacher preparation, and research networks committed to translating findings into policy and practice.

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Looking Ahead: Supporting Neurodivergent Students in European Education Systems

The publication of this study marks an important step toward more responsive and inclusive school environments. As European nations continue to refine their approaches to special educational needs, instruments developed through genuine co-production offer a promising pathway forward.

Ongoing dialogue between researchers, practitioners, families, and young people themselves will be essential to realising the full potential of this work in improving outcomes for autistic and ADHD adolescents.

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Prof. Marcus BlackwellView full profile

Contributing Writer

Shaping the future of academia with expertise in research methodologies and innovation.

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Frequently Asked Questions

📋What is the MERSI questionnaire?

The My Emotional Responses in School Inventory (MERSI) is a 20-item self-report tool co-designed with neurodivergent young people to measure how autistic and ADHD adolescents respond after upsetting school events.

🤝How was the questionnaire developed?

Researchers at King’s College London, UCL, and Anna Freud collaborated with neurodivergent adolescents and young adults over nearly two years through iterative feedback and validation sessions.

📊What were the main findings?

Autistic and ADHD adolescents showed distinct response patterns to school upset and reported approximately twice the emotional burden compared to neurotypical peers, with links to depression and anxiety.

🌍Why is co-design important in this research?

Co-design ensures the tool captures authentic experiences and avoids pathologising natural responses, aligning with European participatory research standards.

🏛️Which institutions led the study?

The Institute of Psychiatry, Psychology & Neuroscience at King’s College London led the work in partnership with University College London and Anna Freud.

🏫What are the implications for European schools?

The MERSI offers educators a practical tool for understanding neurotype-specific emotional responses, supporting more inclusive and differentiated support strategies.

🧠How does this relate to mental health?

Elevated emotional burden correlated significantly with symptoms of depression and anxiety, highlighting the need for proactive support in school settings.

🇪🇺Can the tool be used outside the UK?

Further validation across other European countries is planned, building on the journal’s pan-European reach and collaborative research networks.

👦What age group was studied?

Adolescents aged 11 to 15 participated, including those with autism, ADHD, combined diagnoses, and neurotypical controls.

📖Where can I read the full paper?

The study appears in European Child & Adolescent Psychiatry and is available via Springer Nature Link.