Nurse – DM1-Hub Project

the benefit of patients with Myotonic Dystrophy type 1 (DM1), prioritizing better diagnosis and optimization in the use of soon-to-be-available treatments. The DM1-Hub project brings together a group of 130 professionals in the areas of research and clinical monitoring of DM1. Together they form a multidisciplinary work team with extensive experience in this pathology at the research level, which includes predoctoral, postdoctoral and senior researchers, including renowned research groups in the field of rare neuromuscular diseases and DM1 in particular. Specifically, the team is made up of specialists in genomics, epigenetics, bioinformatics, biostatistics, proteomics, applied research and scientific dissemination. In turn, the team makes up an important network of around 70 health professionals (neurologists, neuropediatricians, neuropsychologists and nurses), in more than 50 hospitals in 10 different Autonomous Communities, who follow up with DM1 patients in their consultations. We are looking for a compromised enthusiastic and compromised nurse for DM1-Hub project. He/she would interact with nurses and other health professionals around Spain that will be doing the same tasks in another Autonomous Communities. Main Responsibilities The contracted professional will be responsible for coordinating and monitoring participants enrolled in the DM1-Hub project, including contacting adult and pediatric patients and organizing study visits across multiple participating hospitals in Barcelona. Key responsibilities will include collecting clinical information through telephone and in-person visits, administering clinical scales and assessments, assisting participants in completing patient-reported outcome measures (PROMs), entering and validating data in the REDCap database, and identifying and resolving missing data. The individual will also participate in regular meetings with DM1-Hub investigators and team members, manage the processing, labeling, storage, and shipment of biological samples to the IGTP-GRENBA laboratory, contribute occasionally to patient workshops and scientific events, and regularly report project Coordinate the DM1-Hub study visit staff, including the organization of training activities, ongoing supervision, and performance follow-up. Ensure the maintenance of study records, monitor data quality, and implement quality control procedures to guarantee the accuracy, completeness, and consistency of collected data. Contribute to the continuous improvement and updating of study protocols, including the identification and implementation of new clinical and research variables relevant to project objectives. Support the coordination of clinical trials conducted by the Neuromuscular Research Group at Hospital Universitari Germans Trias i Pujol, working closely with principal investigators, study coordinators, sponsors, monitors, and clinical staff. Coordinate participant recruitment activities, study visits, and follow-up schedules in accordance with study protocols and timelines. Verify compliance with study protocols, and resolve data queries, and conduct regular data quality reviews and monitoring procedures. Prepare study documentation for monitoring visits, audits, and inspections, ensuring that regulatory and study records are maintained appropriately. Coordinate the collection, processing, storage, and shipment of biological samples according to protocol-specific requirements. Act as a liaison between investigators, study participants, sponsors, contract research organizations (CROs), monitors, and healthcare professionals involved in clinical research activities. Support investigators in participant recruitment, retention, and follow-up processes. Participate in scientific research activities, including literature reviews, data analysis, interpretation of results, and preparation of scientific reports. Contribute to the preparation of abstracts, posters, oral communications, grant applications, and scientific manuscripts for publication in peer-reviewed journals. Present study findings at national and international scientific meetings and congresses and actively contribute to the dissemination of research results. Collaborate with multidisciplinary teams and external partners in the development of observational studies, patient registries, and clinical research projects related to neuromuscular diseases, including myotonic dystrophy type 1 (DM1). Participate in research strategy discussions and contribute to the identification of new research opportunities, study initiatives, and collaborative projects within the neuromuscular field Where to Apply Website: https://igtp.jobs.personio.com/job/2880878 Website for additional job details: https://www.germanstrias.org/es/research/neurociencias/5/grupo-de-investigacion-en-enfermedades-neuromusculares-de-badalona-grenba Requirements Research Field: Medical sciences » Health sciences Education Level: Bachelor Degree or equivalent Skills/Qualifications Nurse degree Skills in blood extraction Used to work with patients (adults and children) 2 years of previous experience in hospital work Microsoft office skills Languages spoken and written: Spanish and Catalan (English would be valued) Skills in coordinating patients’ agendas Skills in communication Open to work in more than 10 hospitals of Barcelona Open to make visits at home Interest in research and willing to learn new skills Skills and Professional Experience in coordinating work teams Skills and Professional Experience in coorfinating multiple projects Languages Spanish – Excellent Catalan – Excellent English – Good Years of Research Experience: 1 - 4 Additional Information Benefits Type of contract and working hours: Permanent, full-time employment contract (under the Spanish Science Law / Ley de la Ciencia). Expected starting date: 1th of January 2027. 36.000 €/year. Gross annual remuneration inherent to the square objected to this call, will be fixed based on the experience provided and the skills of the candidate, distributed in 12 payments. Flexible payment (childminding vouchers). Coverage of transportation expenses for travel to the centres where patient visits are conducted or for biological sample collection 23 days holiday and 5 days for personal matters. Training capsules by the company. Be part of an excellent multidisciplinary research centre with the HRS4R badge. Location on the Can Ruti Campus, a first-class translational research environment in the Barcelona area, in a very stimulating scientific environment. The IGTP offers a supportive, friendly and collaborative ecosystem to promote professional development and help you achieve your research goals. Eligibility criteria Interested persons must attach to the application: Motivation letter explaining their interest in the position. Updated CV. Contact of 2-3 references. Selection process Applications will be evaluated in accordance with the guiding principles and objectives of the supply systems, following the process described below: Curricular evaluation : analysis of the curriculum vitae to assess aspects related to training, professional career and experience in positions related to the job position under selection. Personal interview : once the résumé has been evaluated, the selected candidates will be called for a personal interview to verify and expand on the information detailed in the résumé and to evaluate aspects related to experience and professional skill s. Applications that do not meet the requirements, that are not included in the cases foreseen or that are not processed in accordance with the established procedure will not be considered in the selection process. Additional comments The call for applications will close on 20th November 2026. Work Location(s) Number of offers available: 1 Company/Institute: FUNDACIO INSTITUT D'INVESTIGACIO EN CIENCIES DE LA SALUT GERMANS TRIAS I PUJOL Country: Spain State/Province: Barcelona City: Badalona Postal Code: 08916 Street: Ctra de Can Ruti Contact State/Province: Barcelona City: Badalona Website: http://www.germanstrias.org/ Street: CTRA DE CAN RUTI/ CAMI DE LES ESCOLES S/N Postal Code: 08916 E-Mail: mgonzalez@igtp.cat